We've done an EEG for 48 hours. I don't know what the results are of those. The pulminology team has tried treating with steroids, which would work if it was bronchiolitis or asthma. The steroids didn't work. We do know there is a distinct thickening of the bronchial walls. We don't know why yet. We also know his retractions are getting deeper and deeper, and it's getting harder for him to breathe. Poor Little Guy. Tomorrow, Little Guy will have another bronchoscopy where they'll put a scope down his throat and look at those walls as well as his lungs.
So, we wait. Dr's say best case scenerio is that we're done here in a week. Worst is several more week. I'm hoping for the best but trying to prepare for the worst.
Good Grief , Why can't they figure out what's going on with your son? Girl hand in there you are in my prayers
ReplyDeleteJeanne
O MY! This has got to be so hard on you guys. To go from a hearing test to these major ordeals! You guys are in my thoughts and will continue to hope things turn out great for the lil guy!
ReplyDeleteChristina