When a parent learns that their baby or young child has a hearing loss, they are often left feeling alone and unsure what to do. We've been there and done that with one Deaf child already, and we've just started the journey again with our newborn son. In addition, we learned our baby also has NEHI, a rare form of childhood lung disease. We hope that sharing our experiences will help inspire and encourage other parents of children with hearing loss or who may also have NEHI.
Thursday, June 18, 2009
It's A Tumor. Please Pray.
We are going for another MRI and they're doing it STAT. I'll know more then. It's on the part of his brain that controls breathing, which would explain his hypoxia and blueness. Please pray. I'll update as often as I can.
O NO!!! You will be in my thoughts! I hope everything turns out ok!!!
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