When a parent learns that their baby or young child has a hearing loss, they are often left feeling alone and unsure what to do. We've been there and done that with one Deaf child already, and we've just started the journey again with our newborn son. In addition, we learned our baby also has NEHI, a rare form of childhood lung disease. We hope that sharing our experiences will help inspire and encourage other parents of children with hearing loss or who may also have NEHI.
Friday, June 19, 2009
So...
The echocardiogram and EEG were both negative. I guess that's a good thing. Tomorrow morning, we do the swallow study for aspiration. As simple as an answer that would be, I'm praying really hard that this test is negative. My heart just tells me beyond words that aspiration is not the problem. It just is NOT the issue. If this test comes up positive, I'm really concerned that they'll stop looking and miss something. Maybe I'm nuts. Who wouldn't be after more than a week in a hospital, right? In any case, pray for Little Guy's silly test tomorrow.
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