When a parent learns that their baby or young child has a hearing loss, they are often left feeling alone and unsure what to do. We've been there and done that with one Deaf child already, and we've just started the journey again with our newborn son. In addition, we learned our baby also has NEHI, a rare form of childhood lung disease. We hope that sharing our experiences will help inspire and encourage other parents of children with hearing loss or who may also have NEHI.
Saturday, June 20, 2009
Swallow study is done. :)
Sick of hearing about this yet? We had the swallow study, and it was negative. YAY!!!! I knew aspiration was NOT his problem. The SLP said she's not seen a kid swallow this well in a long time. We all need a talent, right? Tonight is the sleep study we think. He definately has much more trouble when he sleeps, so I'm interested to see what it brings us. He got his oxygen off last night and went down to 82% saturation. Luckily nurses were paying attention and came in to help him put it back in position. Sooooo, we wait.
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Test after test, how frustrating. I guess that's the only way to rule things out and figure it all out. Hope the sleep study goes well.
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