When a parent learns that their baby or young child has a hearing loss, they are often left feeling alone and unsure what to do. We've been there and done that with one Deaf child already, and we've just started the journey again with our newborn son. In addition, we learned our baby also has NEHI, a rare form of childhood lung disease. We hope that sharing our experiences will help inspire and encourage other parents of children with hearing loss or who may also have NEHI.
Wednesday, January 23, 2013
I had sort of given up on my blogging after Raelyn's fund raiser (she has had her surgery, by the way, and it was VERY successful!!!!) because...well...I can't think of a reason other than I was lazy. I figured everyone who could possibly get anything out of my blog was my facebook friend already. I realized recently that facebook just isn't enough. I will never be done Mommying these boys and their siblings. I will never be done on the journey of parenting deaf children. I will always be on this path with them, always be learning with them, always be advocating for them, always be on the sidelines cheering them on, and always be learning from them. So, I'm back. It's time really. CJ and Liam are making progress at record pace, and I need to keep track of it for them and for me. Sometimes when I feel like we're just not getting anywhere, I look back at old posts and realize just how far we've come. It's not a sprint. It's a marathon, and one I'm proud to be a part of.